The Research Center for Children with Special Health Care Needs: Publications
Dumas HM, Fragala-Pinkham MA, Haley SM. Development of a post-acute hospital item bank for the new Pediatric Evaluation of Disability Inventory-Computer Adaptive Test (PEDI-CAT). International Journal of Rehabilitation Research. 2010 May 31. [Epub ahead of print].
Fragala-Pinkham MA, O'Neil ME, Haley SM. Summative evaluation of a pilot aquatic exercise program for children with disabilities. Disability and Health Journal. 2010;3(3): 162-170.
Dumas HM, Fragala-Pinkham MA, Haley SM, Coster WJ, Ying-Chia Kao, Kramer JK, Moed R.Item bank development for a revised Pediatric Evaluation of Disability Inventory (PEDI). Physical & Occupational Therapy in Pediatrics.2010; 30(3):168-184.
Choksi A, Townsend EL, Dumas HM, Haley SM. Functional recovery in children and adolescents with spinal cord injury. Pediatric Physical Therapy. 2010; 22:214-221.
Haley SM, Coster WJ, Kao YC, Dumas HM, Fragala-Pinkham MA,, Kramer JM, Ludlow LH, Moed R. Lessons from use of the Pediatric Evaluation of Disability Inventory (PEDI): Where do we go from here? Pediatric Physical Therapy. 2010;22:69-75.
Retarekar R, Fragala-Pinkham MA, Townsend EL. Effects of aquatic aerobic exercise for a child with cerebral palsy: single subject design. Pediatric Physical Therapy. 2009;21(4):336-344.
Tucker CA, Gorton GE, Watson K, Fragala-Pinkham MA, Dumas HM, Montpetit K, Bilodeau N, Ni PS, Hambleton RK, Haley SM. Assessment of physical functioning in children with cerebral palsy using a parent–report computer adaptive testing approach: Lower extremity skills. Developmental Medicine & Child Neurology. 2009;51(9)717-724.
Tucker CA, Montpetit K, Bilodeau N, Gorton GE, Watson K, Fragala-Pinkham MA, Dumas HM, Ni PS, Hambleton RK, Haley SM. Assessment of physical functioning in children with cerebral palsy using a parent–report computer adaptive testing approach: Upper extremity skills. Developmental Medicine & Child Neurology. 2009;51(9):725-731.
Berry JG, Graham DA, Graham RJ, Zhou J, Putney HL, O’Brien JE, Roberson DW, Goldmann DA. Predictors of clinical outcomes and hospital resource use of children following tracheotomy: Pediatrics. 2009;124(2):563-72.
Fragala-Pinkham MA, Dumas HM, Boyce ME, Peters CY, Haley SM. Evaluation of an adaptive ice skating program for children with disabilities. Developmental Neurorehabilitation. 2009; 12(4):215-223.
Haley SM, Fragala-Pinkham MA, Dumas HM, Ni PS, Gorton GE, Watson K, Montpetit K, Bilodeau N, Hambleton R, Tucker CA. Evaluation of an item bank for a computerized adaptive test of activity in children with cerebral palsy. Physical Therapy. 2009;89(6):589-600.
O’Brien JE, Dumas HM, Haley SM, Peters CY. Development and evaluation of a minimum data set for children with airway support for transfers between acute and post-acute care. Developmental Neurorehabilitation. 2009;12(3):158-163.
Dumas HM, Haley SM, Boyce ME, Peters CY, Mulcahey MJ. Self-report measures of physical function for children and youth with spinal cord injury: Current tools and an option for the future. Developmental Neurorehabilitation. 2009; 12(2):113-118
Haley SM, Dumas HM, Fragala-Pinkham MA, Ni PS, Gorton GE, Watson K, Montpetit K, Bilodeau N, Hambleton R, Tucker CA. Global physical health scale for children with cerebral palsy: Initial psychometric testing of the item bank. Quality of Life Research. 2009; 18;359-370.
Fragala-Pinkham MA, Dumas HM, Barlow CA, Pasternak A. Implementation of an Aquatic Physical Therapy Program for Children and Youth with Disabilities: Case Series. Pediatric Physical Therapy. 2009; 21(1): 68-78.
Fasoli SE, Fragala-Pinkham MA, Hughes R, Stein J, Krebs HI, Hogan N. Robotic therapy and botulinum toxin type A: A novel intervention approach for cerebral palsy. American Journal of Physical Medicine & Rehabilitation. 2008;87(12):1022-1026.
Fasoli SE, Fragala-Pinkham MA, Hughes R, Hogan N, Krebs HI, Stein J, Upper limb robotic therapy for children with hemiplegia. American Journal of Physical Medicine & Rehabilitation. 2008,87(11):929-936.
Dumas HM, Watson K, Fragala-Pinkham MA, Haley SM, Bilodeau N, Montpetit K, Gorton G, Mulcahey MJ, Tucker CA. Cognitive interviewing to elicit parent feedback of test items for assessing physical function in children with cerebral palsy. Pediatric Physical Therapy. 2008;20:356-362.
Tucker CA, Haley SM, Dumas HM, Fragala-Pinkham MA, Watson K, Gorton GE, Montpetit K, Bilodeau N. Physical function for children and youth with cerebral palsy: Item bank development for computer adaptive testing. Journal of Pediatric Rehabilitation Medicine. 2008;1(3):245-253.
Fragala-Pinkham MA, Haley SM, O’Neil ME. Group aquatic exercise program for children with disabilities. Developmental Medicine & Child Neurology. 2008;50(11):822-827.
O'Brien JE, Dumas HM, Haley SM, Ladenheim B, Mast J, Burke SA, Birnkrant DJ, Whitford K, Palazzo R, Neufeld JA, Kharasch VS. Ventilator weaning outcomes in chronic respiratory failure in children. International Journal of Rehabilitation Research. 2007;30(2):171-174.
Fragala-Pinkham MA, Bradford L, Haley SM. Evaluation of the nutrition counseling component of a fitness program for children with disabilities. Pediatric Rehabilitation. 2006;9(4):378-388.
O’Brien JE, Birnkrant D, Dumas HM, Haley SM, Burke SA, Graham RJ, Kharasch VS. Weaning children from mechanical ventilation in a post-acute setting. Pediatric Rehabilitation. 2006;9(4):365-372.
Derosa MA, Raczek AE, Saris-Baglama RN, Dumas HM, Fragala-Pinkham MA, Ware JE. Comparing the performance of physical and social functioning survey items in children with and without disabilities. Developmental Medicine & Child Neurology. 2006; Supplement No. 106, 48:29-30.
Saris-Baglama RN, Raczek AE, Derosa MA, Dumas HM, Fragala-Pinkham MA, Ware JE. Multiple meanings: how pediatric health survey items are understood by clinicians and parents of children with and without disabilities. Developmental Medicine & Child Neurology. 2006; Supplement No. 106, 48:34-35.
Haley SM, Ni PS, Ludlow LH, Fragala-Pinkham MA. Measurement precision and efficiency of multidimensional computer adaptive testing of physical functioning using the Pediatric Evaluation of Disability Inventory. Archives ofPhysical Medicine & Rehabilitation. 2006;87(9):1223-1229.
Haley SM, Fragala-Pinkham MA, Ni PS. Sensitivity of a computer adaptive assessment for measuring functional mobility changes in children enrolled in a community fitness program. Clinical Rehabilitation. 2006;20(7):616-622.
Haley SM, Fragala-Pinkham MA, Dumas HM, Ni PS, Skrinar AM, Cox GF. Physical performance measure for individuals with Mucopolysaccharidosis Type I (MPS I). Developmental Medicine & Child Neurology. 2006;48(7):576-581.
Fragala-Pinkham MA, Haley SM, Goodgold S. Evaluation of a community-based fitness program for children with disabilities. Pediatric Physical Therapy. 2006;18(2):159-167.
Haley SM, Fragala-Pinkham MA Interpreting change scores of tests and measures used in physical therapy.Physical Therapy.2006;86(5):735-43.
O’Neil ME, Fragala-Pinkham MA, Westcott SL, Martin K, Chiarello LA, Valvano J, Rose RU. Physical Therapy Clinical Management Recommendations for Children with Cerebral Palsy - Spastic Diplegia: Achieving Functional Mobility Outcomes. Pediatric Physical Therapy. 2006;18(1): 49-72.
Kelly MK, Dumas HM. Children with ventilator dependence. In: CampbellSK (ed.) Physical Therapy for Children. 3rd ed. Elsevier. Philadelphia, PA. 2005.
Fragala-Pinkham MA, Haley SM, Rabin JP, Kharasch VS. A fitness program for children with disabilities. Physical Therapy. 2005;85(11):1182-1200.
Flood GM, Dumas HM, Haley SM. Central auditory processing and social functioning following brain injury in children. Brain Injury. 2005;19(12):1019-1026.
Kharasch VS, Hamilton NTH, Dumas HM, Haley SM, Specht L, Colin AA. Head circumference and chronic positive pressure ventilation in children. Child’s Nervous System. 2005;21(11):986-990.
Hull EM, Dumas HM, Crowley RA, Kharasch VS. Tracheostomy speaking valves for children: tolerance and clinical benefits. Pediatric Rehabilitation. July–September 2005;8(3):214-219.
Haley SM, Fragala-Pinkham MA, Latham NK, Skrinar AM, Cogswell, D. The emerging role of the pediatric physical therapist in evaluation and intervention for individuals with Lysosomal Storage Diseases. Pediatric Physical Therapy. 2005;17(2):128-139.
Bedell GM, Cohn ES, Dumas HM. Exploring parents’ use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy. 2005;59(3):273-284.
Haley SM, Raczek AE, Coster WJ, Dumas HM, Fragala-Pinkham MA. Assessing mobility in children using computer adaptive testing. Archives of Physical Medicine and Rehabilitation. 2005; 86(5):932-939.
Baens-Ferrer C, Roseman M, Dumas HM, Haley SM. Oral rehabilitation under general anesthesia and quality of life for children with special health care needs. Pediatric Dentistry. 2005;27(2):137-142.
Lewis C, Fragala-Pinkham MA. Effects of aerobic conditioning and strength training on a child with Down syndrome: a case study.Pediatric Physical Therapy. 2005;17(1):30-36.
O’Brien JE, Dumas HM, Graham RJ, Kharasch VS. Breath of Fresh Air: Establishing a minimum data set for pediatric pulmonary rehabilitation. Advance for Directors in Rehabilitation. 2005;14(2):57-58.
Haley SM, Fragala MA, Ni PS, Skrinar AM, Corzo D. A computer adaptive testing approach for assessing physical functioning in children and adolescents. Developmental Medicine &Child Neurology. 2005;47(2):113-120.
Haley SM, Fragala-Pinkham MA, Ni PS, Skrinar AM, Kaye EM. Pediatric physical functioning reference curves. Pediatric Neurology. 2004;31(5):333-341.
Dumas HM, Haley SM, Carey TM. The relationship between functional mobility and the intensity of physical therapy intervention in children with traumatic brain injury. Pediatric Physical Therapy. 2004;16(3):157-164.
Haley SM, Graham RJ, Dumas HM. Outcome rating scales in pediatric head injury. Journal of Intensive Care Medicine. 2004;19(4)205-219.
Graham RJ, Dumas HM, O’Brien JE, Burns JP. Congenital neurodevelopmental disabilities and the intensive care: defining a population. Pediatric Critical Care Medicine. 2004;5(4):321-328.
Dumas HM, Fragala MA, Haley SM, Skrinar A, Wraith JE, Cox GF. Physical performance testing in MPS I: A pilot study. Pediatric Rehabilitation. 2004;7(2):125-131.
Dumas HM, Haley SM, Ludlow LH, Carey TM. Recovery of ambulation during inpatient rehabilitation: physical therapy prognosis for children and youth with traumatic brain injury. Physical Therapy. 2004;84(3):232-242.
Bedell GM, Dumas HM. Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: a follow-up study. Brain Injury. 2004;18(1):65-82.
O’Neil ME, Fragala MA, Dumas HM. Physical therapy intervention for children with cerebral palsy who receive botulinum toxin A injections. Pediatric Physical Therapy. 2003;15(4):204-215.
Haley, SM, Fragala MA, Aseltine RA, Pensheng N, Skrinar AM. Development of a disease-specific disability instrument for Pompe Disease. Pediatric Rehabilitation. 2003;6(2):77-84.
Iyer LV, Haley SM, Watkins MP, Dumas HM. Establishing minimal clinically important differences of the Pediatric Evaluation of Disability Inventory: functional changes during inpatient rehabilitation. Physical Therapy. 2003;83(10):888-898.
Haley SM, Dumas HM, Rabin JP, Ni P. Early recovery of walking in children and youth with traumatic brain injury. Developmental Medicine & Child Neurology. 2003;45(10):671-675.
Haley, SM, Fragala MA, Skrinar AM. Pompe disease and physical disability. Developmental Medicine & Child Neurology. 2003;45(9):618-623.
Kothari DH, Haley SM, Gill-Body KM, Dumas HM. Measuring functional change in children with acquired brain injury (ABI): Comparison of generic and ABI-specific scales using the Pediatric Evaluation of Disability Inventory (PEDI). Physical Therapy. 2003;83(9):776-785.
Fragala MA, Goodgold S, Dumas HM. Effects of lower extremity passive stretching: pilot study of children and youth with severe limitations in self-mobility. Pediatric Physical Therapy. 2003;15(3):167-175.
Carey TM. Critical Reviews. Functional outcome of botulinum toxin A injections to the lower limbs in cerebral palsy. Pediatric Physical Therapy. 2003;15(3):188-189.
Kharasch VS, Haley SM, Dumas HM, Ludlow LH, O’Brien JE. Oxygen and ventilator weaning during inpatient pediatric pulmonaryrehabilitation. Pediatric Pulmonology. 2003;35(4):280-287.
Tokcan G, Haley SM, Gill-Body K, Dumas HM. Item-specific recovery of functional activities for children with acquired brain injury. Pediatric Physical Therapy. 2003;15(1):16-22.
Dumas HM, Haley SM, Carey TM, Ludlow LH,Rabin JP. Lower extremity spasticity as an early marker of ambulatory recovery following traumatic brain injury.Child’s Nervous System. 2003;19(2):114-8.
Kharasch V. Non-invasive positive pressure ventilation: principles and applications. Pediatric Pulmonology. 2002;34(1);89. (Book Review)
Cushman DG, O’Brien JE, Dumas HM, Haley SM, Kharasch VS. Re-admissions to inpatient pediatric pulmonary rehabilitation. Pediatric Rehabilitation 2002;5(3):133-139.
Vervoort VS, Smith RJH, O’Brien J, Schroer, Abbott A, Stevenson RE, Schwartz CE. Genomic rearrangements of EYA1 account for a large fraction of families with BOR syndrome. European Journal of Human Genetics. 2002;10(11):757-766.
Dumas HM, Carey TM. Motor skill and mobility outcomes of children with traumatic brain injury: annotated bibliography. Physical & Occupational Therapy in Pediatrics. 2002;22(3/4):73-100.
Fragala MA, O’Neil ME, Russo KJ, Dumas HM. Impairment, disability and satisfaction outcomes after lower extremity botulinum toxin injections for children with Cerebral Palsy. Pediatric Physical Therapy. 2002;14(3):132-144.
Dumas HM, Haley SM, Ludlow LH, Rabin JP. Functional recovery in pediatric traumatic brain injury during inpatient rehabilitation. American Journal of Physical Medicine & Rehabilitation. 2002;81(9):661-669.
Dumas HM, Haley SM, Steva BJ. Functional changes during inpatient rehabilitation for children with musculoskeletal diagnoses. Pediatric Physical Therapy. 2002;14(2):85-91.
O’Brien JE, Dumas HM, Haley SM, O’Neil ME, Renn M, Bartalocci T, Kharasch VS. Clinical findings and resource use of infants and toddlers dependent on ventilators. Clinical Pediatrics. 2002;41(3):155-162.
Fragala MA, Haley SM, Dumas HM, Rabin JP. Classifying mobility recovery in children and youth with brain injury following hospital-based rehabilitation. Brain Injury. 2002;16(2):149-160.
Crowley R. Nourishing young lives. Advance for Directors in Rehabilitation. February, 2002.
Crowley R. Pediatric feeding solutions.Advance for Speech-Language Pathologists & Audiologists.February, 2002.
Dumas HM, Cushman DG, O’Brien JE, Costello, L. Family-centered information. Rehab Management. December, 2001.
Dumas HM, Bedell G, Haley SM, Hull E. Social function changes in children and adolescents with acquired brain injury during inpatient rehabilitation. Pediatric Rehabilitation. 2001;4(4):177-185.
Dumas HM, Haley SM, Fragala MA, Steva BJ. Self-care recovery of children and adolescents with acquired brain injury: descriptive analysis using the Pediatric Evaluation of Disability Inventory (PEDI) self-care classification levels. Physical & Occupational Therapy in Pediatrics. 2001;21(2/3):7-27.
Dumas HM, Haley SM, Rabin JP. Short-term durability and improvement of functional outcomes in pediatric brain injury. Brain Injury. 2001;15(10):891-902.
Dumas HM, Fragala MA, O’Neil ME. Expert consensus on physical therapist intervention following Botox® injection for children with Cerebral Palsy. Pediatric Physical Therapy. 2001;13(3):122-132.
Dumas HM. Clinical review of the Pediatric Evaluation of Disability Inventory. Pediatric Physical Therapy. 2001;13(1):47-48. (Critical Review)
Haley SM, Dumas HM, Ludlow LH. Variation by diagnostic and practice pattern groups in the mobility outcomes of inpatient rehabilitation programs for children and youth. Physical Therapy. 2001;81(8):1425-1436.
Dumas HM, Francesconi S. Aquatic therapy in pediatrics: annotated bibliography. Physical & Occupational Therapy in Pediatrics. 2001;20(4):63-78.
Haley SM, Russo KJ. Musculoskeletal outcomes in pediatric physical therapy practice. Orthopedic Physical Therapy Clinics of North America. 2000;9(1):17-36.
Dumas HM, Fragala MA, O’Neil, ME, Rabin JP. Using Botox® to manage spasticity in children. Rehab Management. August/September 2000.
Kelly MK, Dumas HM. Children with ventilator dependence. In: CampbellSK (ed.) Physical Therapy for Children.
2nd ed. Harcourt Health Sciences. Philadelphia, PA. 2000.
Fragala M, Lewis C. Pediatric physical therapy. In: Dershewitz, R.A. (ed.). Ambulatory Pediatric Care. 1999.
Dumas HM. The Ventilator-Assisted Child-A Practical Resource Guide. (Book Review). Pediatric Physical Therapy. 1998;10(1):37.
Dumas HM, Reardon J. Reconnecting to the community. Rehab Management.1998;11(3):52-53.
Dumas HM, Reardon J. Improving team conference reporting skills. Rehab Management. 1996; 9(6):63-65.